Anyone who actually reads this already knows what the past few months have been like. I've been hellaciously busy with school, work, wedding plans, grief, trying to take care of myself, and trying to have a social life all at once. I finally have a chance to sit in front of my computer and write, edit, and re-edit before posting. I'm weird like that.
First, and most importantly, my life has been changed forever. On April 4th, my father went to the hospital 2 days after having symptoms of a heart attack. He had been getting dressed and was suddenly short of breath and having chest pains. He went outside to get help from a neighbor, and collapsed. I don't know how long he was there, but eventually his neighbor came and offered to call an ambulance. My stubborn father refused, and went about his day. I spoke to him later that day, and was obviously very concerned. I begged him to go to the hospital, citing my upcoming wedding and my inability to see my wedding without him.
He went to the hospital 2 days later, and tests indicated that he did have a heart attack. Considering he had been struggling with congestive heart failure and circulatory issues for at least 10 years, and already had at least one heart attack, this was not a surprise. When he was in Cincinnati in Oct-Nov, I was shocked by how much water weight he put on and his unwillingness to take is medication or eat anything remotely healthy. Apparently, by the time he got to the hospital, he had 50-70 lbs of water weight. He gurgled when he spoke, due to the water in and around his lungs. He coughed and couldn't catch his breath. It was absolutely terrifying to listen to him. After much consideration and thought by his medical team, it was decided that he would have an angiogram to see what kind of blockages they were dealing with.
The angiogram was done on April 6th, and it was decided that he needed a stent in one of his arteries. Surgery went well, though doctors said that he needed to give up smoking and start living healthier because there were no more surgeries they could do.
I spoke to my father that night. I begged him to stop smoking. He said the following, "You're why I'm here. I'm here because you wanted me to go to the hospital." We finished our conversation, said our, "I love you"s, and got off the phone.
At some point during the night, he started asking, then
demanding to be let outside for a cigarette. Mind you, this is a man who just had cardiac surgery less than 12 hours before. He was repeatedly told NO, and he got himself so worked up that he went into cardiac arrest. His heart stopped multiple times over the course of 3 hours. They put him on a ventilator immediately, but if the heart is not pumping there is nowhere for the oxygen to go. Eventually, he stabilized though he stayed on the vent.
The next few days were spent waiting, hoping that he could/would breathe on his own. He could never quite get enough breath volume to do it though. We waited, and waited, and waited some more. Meanwhile, doctors were trying to figure out if his brain had been damaged from lack of oxygen during his cardiac arrests. He would open his eyes, squeeze hands, and move his fingers and toes. He was easily agitated, though, so they kept him asleep as much as possible.
As the days dragged on, I started losing hope. I was in the middle of the cardiac chapter in Bio 3 when this happened, and realized that the damage to his heart was not reversible. I work with a patient who has brain damage from a lack of oxygen from cardiac arrest, and shuddered to think of my dad's life being that way.
But I didn't care. I didn't care if he was in a wheelchair or couldn't remember anything...if he had a trach...I just wanted my dad at my wedding to walk me down the aisle.
Eventually, most people who are on a ventilator for an extended time develop pneumonia. This happened to my dad, and it was expected that he would heal in a few days. My concern, however, became pure panic on April 17th. 10 days on the ventilator, and the pneumonia was so bad that he lost all blood pressure. There was a conference call between Gloria, Mike, Uncle Warren, and several doctors that day, discussing what would become of dad once the infection cleared up. It was decided that he would get a tracheotomy and be moved to long term care (ie: nursing home) to recover and see where to go from there. Nobody could tell how much damage was done to his brain because they couldn't do an MRI. They would have had to take him out of sedation, and my father was extremely claustrophobic. To have him awake in an MRI would have meant his death, because he was so fragile and so afraid of enclosed spaces.
My stress hit an all-time peak, and I spent quite a lot of time that day crying on the phone to whoever would listen. I feared that I was going to lose my father, and everyone I spoke to tried to calm and reassure me.
After I got home from work that day, I got a call from my brother Mike. He said that a palliative nurse tried to get a hold of Gloria, that there was some sort of emergency but they couldn't tell him what was going on. After an hour of trying to contact Gloria, I called the hospital and demanded information. He had another cardiac arrest, but was stable for the moment. I got word that Gloria was on her way to the hospital, so I decided to try to relax. By that time, Derek was home to do damage control and hold my pieces together.
Shortly after 9pm, I got another call from Mike. I'll never forget this conversation as long as I live. "It happened again, his heart stopped...they tried to get him back, but Dad passed a little before 9." I remember hearing "Dad passed" and going completely numb from head to toe, while taking a heavy breath in. For that one moment in time, I was completely speechless and devastated. I asked Mike to call John, and said that I would call Mom and Brianna. After we got off the phone, I remember turning immediately to Derek and falling into him, without a word, and I began to sob. It was an uncontrollable, purely primal sob and scream that I don't ever want to hear come out of my mouth again. I remember sobbing into his chest, sobbing "no" over and over again, and he held me tighter than I've ever been held. Eventually I decided to calm myself down enough to call people. I called my mom first, then Jamie, then Sarah...before finally calming myself enough to call Brianna. When I told her, all I heard was a tortured scream and then the phone disconnected. I tried over and over to get her back on the phone but my sweet sister was trying to get herself together enough to get a ride home from work.
I don't think I've ever cried so much. Over the next month, it took everything I had not to break down while doing normal things. I took 2 weeks off from wedding planning, as I just couldn't bear to think of my wedding without my dad. I asked John and Mike to walk me down the aisle, they said yes, and I cried some more. Going to work, going to school, and trying to have fun with Derek and our families distracted me just enough. I'm still very emotionally unstable, and I cry at the drop of a hat over the silliest things.
My life has changed forever. He may not have been the perfect father, but he was
mine. He died 10 days before his 60th birthday, and the anger and bitterness I feel is echoed through our family.
Derek has been amazing through all of this. When dad was in the hospital, he listened to all of my worries and comforted me. The night he died, he held me so perfectly. And in the following months, he has endured my mood swings and random crying fits like a champ. I am so lucky to have such an amazing man in my life, and I can't wait to call him my husband. We have pledged to each other that we will not put each other or our children through this--my father flat-out refused to take care of himself and it led to a very untimely death.
I cry every time I think about the wedding. Every little girl dreams of their wedding day...being walked down the aisle and given away by their father. For me, it's not going to happen. I will ride in a horse-drawn carriage to be greeted by my brothers, and they will lead me to my future husband. There will be no father-daughter dance. My dad won't get drunk on scotch & water, nor will he pick fights with anyone. He won't hear the announcement of my pregnancy, nor will he hold my child. I find these things very unfair. I deserved to have him around for many more years, and now I'm worried that my mom will die before her time, too.
I have to take better care of myself. I've already started by getting an e-cigarette in March...I've smoked probably a pack of cigarettes since then. It's a small victory, and not a perfect one, but it's a start. We've started eating less red meat and more chicken, pork, and fish...that's another start. Anything I can do to keep myself away from death's door is a welcome suggestion. I'm scared for my mom, my brothers, Derek's mom, Derek, and myself. We have to be good to ourselves, and if there is one lesson I've learned from all of this, that's it.
There is so much more for me to write about...but it's going to have to wait for another day. I have almost 3 weeks off of school, so I should have time to write again. It feels good to get all of that out into the blogosphere finally.